Yep, that actually happened this morning as I gave Callum a big hug! It reminded me of the day Callum said ‘Mum’ for the first time in years when we first visited Canada. The joy I felt was overwhelming.
As ever Callum’s timing couldn’t have been better as it’s been a tough couple of days for Callum which I will share with you all. It’s important to know the highs and lows in Callum’s journey as it helps appreciate the highs.
As I was driving home from work on Tuesday evening I received a phone call from my Mum, who was looking after Callum and Euan after school, explaining Callum was having another seizure. Thankfully I was two minutes away and an ambulance was on it’s way. This was the third seizure Callum has had since 2014 and nearly two years since his last one which was very severe.
These episodes are quite simply horrific. As parents we are helpless we just have to make sure Callum’s safe and constantly reassure him all will be just fine. Although inside that is the last thing we feel. Callum was surrounded by his nearest and dearest, including Euan who was very scared at seeing his brother so helpless. Euan was incredible, initially he just sat on the stairs in the hallway with my Dad whilst my Mum and I helped Callum. However, once the paramedic arrived Euan joined us and helped by being practical; he got the wipes, the damp towel for Callum’s head, wafted a cushion above Callum’s head to keep him cool, went out into the road to show the ambulance where to park and packed a bag of clothes for Callum for the hospital. Being practical helped Euan cope. He was so brave for a 9 year old who was very scared.
Callum and I went in the ambulance to the hospital, Hamish and Euan followed us in the car whilst Mum and Dad caught their breath before cleaning the house as Callum had been very sick.
Once we arrived at the hospital Callum recovered fairly quickly and his temperature began to come down slowly. From further inspection it was evident Callum’s tonsils were very large and red and his left ear was red – he was poorly and this caused a spike in his temperature which caused the seizure. For once Hamish and I could apply some logic to this episode which helped us rationalise it all. As Callum was wheeled from resus to the ward Euan held Callum’s hand all of the way and kept talking to him by reassuring him with statements such as ‘I am proud of you Callum,’ ‘you are so brave Callum,’ ‘you are OK now Callum.’ The doctor who was walking behind them both with Hamish and I said ‘Callum has one very special big brother there’ which made us burst with pride.
A quote very apt for Euan as through a terrible experience, he adapted so very well and is certainly Callum’s hero.
As a result of this seizure Callum’s anti-epileptic medication has been increased due to his height and weight growth and he is on a new sleep medication. We believe his recent lack of sleep was a contributing factor to this so fingers crossed this will help. We are now back on track!
So – back to the ‘I love you too’ statement from Callum this morning – it meant the world to me and the knowing smile he gave me when I asked ‘did you just tell me you loved me Callum’ made my day!